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The Power of SCI

What is cooperation?

Merriam-Webster.com says “cooperation” is: “(a) a situation in which people work together to do something, (b) the actions of someone who is being helpful by doing what is wanted or asked for.”

I hear disheartening reports of unmotivated SCIs, bitter about their circumstances, making life miserable for their families/caregivers. Not only are they unwilling and uncooperative to “work together” to get with the program—exercise, dressing, bowel and bladder, etc.—they resentfully and begrudgingly battle self-improvement, as well.

Because this character quality is lacking in so many able-bodied and disabled adults, I began explaining, talking about, and demonstrating lessons in cooperation to my grandniece when she was three years old. Teaching her skills for successful relationships is part of my contribution to her personal growth.

How is it that man is born with the reasoning capacity and capability for concerted cooperation, but it’s most often witnessed in the animal kingdom? It makes no sense; unlike the band of three bottlenose dolphins around Savannah, Georgia who work as a tactical unit.

The dolphin’s operation is to swim into the shallow tidal marshes. With their bodies, they patiently and strategically flush the herded fish onto shore. It’s life-threatening if one were to become marooned, but they risk it for food. They not only feed themselves, but also the egrets and gulls who have learned to rely on the dolphins.
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From this example, I’m comparing the ministry of caregivers who daily sacrifice their health for ours to that of the dolphin’s risk, and how we SCIs benefit from caregiving, to the egrets and gulls reliance on the dolphins.

Come on, SCIs. Let’s get with the program! Yes, it’s tough to lose physical independence. It’s the biggest bummer I know! No matter how hard you try to deny it, close your eyes to your needs, and barricade your heart from the disappointment, the situation remains. It’s time to accept the new reality of being dependent on others for things we took for granted prior to disability.

It doesn’t mean you’ve lost control of your life! (Look for the upcoming series on how to increase the power in your life for the New Year.) It just means that others may have to serve as your backbone, legs, and hands. You have control over the energy in the room, negative or positive.

For everyone’s health and happiness, make the decision to cooperate, “to work together to do something” beneficial for all. Become an enthusiastic member of the loving team working toward your rehabilitation and well-being. It’s within your power.

Christmas Gift Rush and Crazy’s Prediction

After each Christmas, I always say, “Spring will be here before we know it.” Then, when the first hot spring day summons summer, I predict, “Christmas will be here before we know it.” It happens with 100% accuracy. I’m a regular Jean Dixon!

Again, it’s that time. Stores have already announced that their manic rush-to-buy-Christmas-gifts-midnight-madness sales will begin this year after Thanksgiving dinner! The traditional Thanksgiving overindulgences followed with horizontal bemoaning of over-stuffed bellies has been sold out to bemoaning over-crowded stores, rude people, and traffic, traffic, traffic.

Yes, “crazy” has fulfilled itself again: doing the same thing over and over, expecting different results…which drives me crazy. And, I know people consider me crazy because I already have Christmas planned and gifts purchased, as well as for Christmas of 2014. Let me explain:

Considering the wear-and-tear of years living with SCI and the difficulty of outings, I host an internationally-themed Christmas Eve meal each year for my family in my home. I celebrate Christmas and exchange gifts with them here. (These pictures show a little from last year’s trip to The North Pole.)

blurry Elf tree
blurry Elf tree
HO! HO! HO!
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On Christmas Day, they host their own in their homes and/or with in-laws. I enjoy their exchanges via videos and pictures. (You can vicariously enjoy my past celebrations, or get ideas for your own, in the chapter, “Homemade Memories” of Views From My Chariot: A Wheelchair Oddity http://booklocker.com/books/6235.html purchased right here off my website, the perfect Christmas gift!)

favorite candy served as "name card" for seating
favorite candy served as “name card” for seating

I choose a country (or heritage), research its populous, geography, outstanding characteristics, famous people, and holiday menus. I decorate my home accordingly, and give gifts from that country or symbolic of the country. This all takes time and thought, not to mention being disabled, and a non-driver. But, it can be done with ease, excitement, and joyful anticipation of the season if you don’t wait. The only thing left for me to do is prepare, purchase or cater the meal. I can peace out.

What I’m saying is: You still have time. Save yourself the stress. Stop the crazy holiday madness. Everything can be done on-line or over-the-phone. No hassles, anxiety- and annoyance-free. And, if you’re disabled, disability is no excuse.

I’m predicting that a handful of you will get it, yet the majority will prove, again, that c-ra-zy is its own prediction!

FYI: Going with my “prediction” theme, the persimmon kernel is revealing 2013’s winter forecast.

When a persimmon seed is cut into, the inside of the kernel will be spoon-shaped forecasting heavy snow (spoon equals shovel), fork-shaped for light snow and a mild winter, or knife-shaped for “cut”-ting, icy winds.

This one is indicative of heavy snow—another reason not to procrastinate!

And, if you haven’t signed up for my newsletter, “Chariot Notes,” you’re missing out on some wonderful health tips and gift suggestions. December is the most fun yet! (After signing up, you’ll need to confirm that it’s you in an email I send you.)

 

 

Winning, Warnings, and Wheelchairs

As with any of you living with a disability, my journey toward independence has been showered with ubiquitous “ups” and, at times, littered with dubious “downs.” One of the downers is shopping.

Just like the able-bodied, I use earth-friendly bags, paper bags and, less often, the plastic bag. Unlike an able-bodied person, I do the stack-on-my-lap, carry-with-my-teeth, and hang-around-my-neck tricks transporting my haul. In the “FYI” chapter of Views From My Chariot http://booklocker.com/books/6235.html , I proudly share some of my inventive uses of plastic grocery bags for you other chariot (wheelchair) riders…even catching chipmunks. Yes, it’s a fascinating read and an excellent gift!

But, here’s one proven not so ingenious use. DO NOT try this at home, at work, or anywhere else.

I wanted to check my mail. From the street, my driveway slopes down to my house. My mailbox is halfway down my driveway, equidistant from the street and my house. (The P.O. approved my putting it off the street since I’m disabled.)

The wind was whipping as it began to rain. Being a SCI quadriplegic, I don’t have the dexterity to hold an umbrella and wheel uphill, so I thought I’d use an opaque plastic bag over my head as a rain hat; you know, like the clear plastic ‘rain hats’ your grandmother used after leaving the beauty shop on rainy days. It would keep my hair dry, and I could safely see through it.

ill-boding bag
ill-boding bag

I put it over my head and face, its handles hanging down over my ears like earmuffs. To secure it, I held the handles with my teeth and began my grind up to the box. Of course, to prevent a runaway wheelchair from sabotaging my errand in the rain, I had to brake my chair at the mailbox.

Once all my mail and catalogs were safely balanced on my lap, I unlocked my brakes. Again, to prevent a “runaway wheelchair” from skidding off the back of my covered carport, I held them in tension against my wet tires; yet, speedily grinding downhill.

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Instantly, the wind’s pressure swooshed the plastic bag airtight against my face. My hands otherwise occupied, I couldn’t remove it…and I couldn’t breathe!

Although I could clearly see my carport, it seemed an eternity away. With bulging eyes, I finally screeched to a frantic halt on its level pavement, snatched off the suffocation bag, and gratefully gasped in depleted air. Whew! I didn’t pass out!

Lesson learned: The “Warning: To avoid danger of suffocation, keep this plastic bag away from babies and children….” lacks clarity.

I still use the multi-purpose opaque plastic bags. But now, on rainy, windy days—not only as a creative solution, but also representative of my winning attitude, I stick my tongue out against the bag. This gives me an air pocket when it tries to suffocate me.

Is my disability the result of oxygen deprivation, you wonder? It’s up for debate.

 

 

“The Fifth Element”-Love’s Surrender, Will Power, and SCI

Today, I’m correlating the similarity of a fictitious character’s hesitation to change to those of us living with a disability, disease, or illness who do the same.

In “The Fifth Element,” a sci-fi movie set in the 23rd century, in order to defeat a great evil, there were four stones and a sarcophagus, containing a ‘fifth element,’ left for safe-keeping in an Egyptian temple. This fifth element was DNA representing the “Divine Light.” The stones represented the four elements—earth, wind, fire, and water.

The DNA is turned into the “state” lab where it is transformed into human form, Leeloo. She escapes, is rescued by Dallas, a former special forces Major who is now a taxicab driver. Soon, he presents her to a priest who recognizes her as earth’s savior. The battle to save earth ensues.

After battling the opposing evils to confiscate the stones, Dallas, Leeloo, and the priest return to the Egyptian temple to arrange the captured stones and release Leeloo’s ’Divine Light.’ When their efforts to unite the elements appear hopeless and Leeloo is slipping away from discouragement, a confession of love from Dallas causes Leeloo to surrender her love to him. As she yields, the power of ‘The Light’ melds with the other elements, explodes, and destroys the Great Evil.

Like-kind, how often do we, living with a disability, resist change, something new or unfamiliar, due to fear and discouragement? Whether it’s the uncertain territory of SCI or a life interruption that has overwhelmed you; being uprooted for a job promotion to face the unknown; a financial decision or business investment that could lead you into economic ruin; even the uncertainty of commitment to a new relationship. Fear can hold us back, blinding us to the light of opportunity, robbing us of purpose and fulfillment.

I try to stay positive and open-minded to change. “Flexibility” is my middle name. Both my books espouse the benefits of embracing change. But, I also have a “Someday” wish/fear. It’s an entrepreneurial venture that, ever so often, peaks its scary face into my consciousness.
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I’m not inexperienced in business. I’ve been invested in several. But, this “wish/fear” is a larger-than-my-past-business-venture budgets. It’s a BIG BUT-get!

But, I will get it! The chapter, “Facing Fears,” in Views From My Chariot http://booklocker.com/books/6235.html is about facing three of my past fears, all ramifications of my SCI. I’m forthright about other fears and failures in HOW TO BE THE BEST YOU http://booklocker.com/books/6811.html . I totally understand using denial and rationalizations to avoid the unpredictable. In time, after using these excuses over and over and over, they’re stretched so thinly that I can finally see through them to the ‘Divine light of possibility.’

Just as Leeloo’s surrender to Dallas’ love released the power to defeat The Great Evil, conquering “the great evil” of whatever fear (disability-related, or not) is causing you worry, anxiety, and trepidation will release your power, as well.

 

Worth, Value, and Nostalgia

Disability aside, have you ever hitched a ride or picked up a hitchhiker? Whether for a single mile to get gas for your/their empty tank or for a thrilling cross-country trek, you know a bad ride.

And, if you have ever been the host ride for the tenacious cockle burr, you know the aggravation and pain of these small ½-inch long, brown burred seeds with sharp, hooked spines. They are hitchhikers from hell, traveling the world by stealthily sticking to your clothing and/or your pet’s fur! My bloody fingers have felt like pin cushions after unwinding my Irish Setter’s long silky hair from their snare.

What made me think of hitchhiking? A math compass from a drafting course I took in the 1800s (a little before my SCI) that has mysteriously found its way to my keyboard tray. How is it that some things stick with us after high school and college graduations through multiple storages, transfers, uproots, marriage, and divorce?

What greater worth does a 6-inch metal math compass have over a luxuriously overstuffed, expensive upholstered chair that I left in one of my moves! For that matter, a couch in another? Nostalgia.

Before living with a disability, I used to love browsing through hardware stores. Yes, small town hardware stores! They reek of yesteryear. I loved the feel and smell of suede gloves, the fantasy of an overstuffed and oft’ used tool belt, puzzling assortments of hammers with every length and shape of nail, drawers of miscellaneous pulls and knobs, every type of rake and hoe…which brings me to Goldie.

Goldie was an avid gardener. She nurtured fields of fruits, vegetables, and flowers. She canned, pickled, and/or froze the produce, even pressed and dried her flowers. But, what most impressed me was her hoe. Yes, her garden hoe.

It was the only hoe she had ever used, was almost as old as she was, and boasted a filed down 2-inch blade, compared to its initial 3 1/4-inch depth! To maintain its best hoeing self, she sharpened it after each season’s use.
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I grew up on a farm and we always had a garden; but, I had never known anyone like Goldie who took such care of their hoe. I thought her attention to its excellence was as extreme as my dad’s cleaning of his firearms after each hunt. The seed was sown. I wanted a hoe to cherish. I wanted to wield it for as long as Goldie had. Goldie was the inspiration for my first organic garden.

At twenty-six, I prepared, composted, hoed, planted, groomed, irrigated, and cultivated that garden. Its greatest yield was two dozen pints of hot chow-chow/relish. (My dad called it “pea ruiner.”) Disappointingly, bugs got the Brussels sprouts and broccoli; my Irish Setter got the cantaloupes and watermelons. When they were mere hardball size, he picked them for lone games of toss and catch!

As destiny would have it, I experienced a SCI before the next planting. My hoe blade was never sharpened. But, my metal math compass has inexplicably made its way to my keyboard tray. For a finger function substitute, I use its sharp point as a flip-top opener for sodas and juices. That’s its helpful function.

With every pro, there’s a con. The “con” of its sharp point: piercing one of these tin cans! The carbonated contents of a Sierra Mist spewed four feet onto the nearest wall—showering its ant attracting sugar across papers, files, books, and bills—until the liquid level fell below the can’s pierce. I finally wised up midway through its geyser and tilted the can away from the wall to lower the liquid’s level and stop its display.

No matter. It’s my little nostalgic hitchhiker treasure of bygone days. It’s not a sharpened hoe blade, but it makes its point.

SCI Bonus Serendipities

In the SCI community, we’re familiar with most professional’s prognosis for expected return: Whatever return you’re going to have, you’ll have by the second year. Anything else is a bonus. “Bonus” is the optional—left to personal choice—word.

For many, this is a disappointing truth. But for a large majority, serendipitous bonuses continue to surprise us for many years post injury!

Until I joined Apparelyzed http://www.apparelyzed.com/disability-directory/disability-forums-chat/, I had no idea of the number of happy, productive wheelchair warriors there were like me. I’m a young whippersnapper of 37 years post-injury compared to some 45, 50, and 60+ years post-injury; most of them, still happily and positively contributing to society.

I didn’t know the importance of SCI like-mindedness: the nonjudgmental acceptance of normal depression, grief, and denial following a life trauma; an understanding sounding board to rant—to cleanse the emotions in a safe environment; to learn from others’ similar or like experiences, and how-to cope with such.

I didn’t know the importance of annual evaluations by my spinal cord injury and rehabilitation doctor, or even wheelchair and cushion evaluations from a SCI-specialized PT.

Late in the game, I’ve learned a lot from those contributing on this forum. I’ve learned that many others have also earned bonuses of increased muscular strength, movement, and sensation (my sensation continues to improve after this long!); urinary and bowel control or a maintenance program; having children and grandchildren; achieving professional/financial success; living a wonderful life.

No matter the circumstance, the best medicine for long-lasting mental and physical health, as well as productivity is: having an empathetic and understanding ear to talk to, a sunny outlook, a full calendar, and faithful maintenance of our body and lifestyle.

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We’re not the creators of our bodies, but I believe the more we know about them, understand their hints and hitches, envision and profess our hopes for them/our future, and optimistically work toward their fulfillment, the greater our bonuses!

Yes. In time, we will face one or more repercussions of SCI. Meantime, what we do with our abilities—imagination, determination, hope, and faith—assuredly makes a difference.

I wish a long life of serendipitous bonuses to you all!

Would you like to share a few of yours?

http://booklocker.com/books/6235.html (Views From My Chariot) 

http://booklocker.com/books/6811.html (HOW TO BE THE BEST YOU)

Do You Know…

Have you ever felt like life was out of your control? Do you feel alone, forgotten, robbed of purpose and worth? Don’t fall for it! It’s far from the truth.

Beneath His wings
Beneath His wings

Sometimes, circumstances scream “Powerless!” at us. If you believe it, you are. If you don’t, herein lies your true power.

Remember the Christmas classic, “It’s A Wonderful Life?” George Bailey (Jimmy Stewart) is a frustrated businessman with compromised dreams from personal sacrifices. Finding himself in a desperate financial strait, thoughts of his unworthiness, thoughts that he should have never been born, drive him to consider suicide. Then his guardian angel, Clarence, shows him how his nonexistence would have negatively affected the residents of Bedford Falls. This movie is a vivid reminder of the malevolence of self-doubt.

We can all suffer from its destructive, indoctrinating effects IF we listen to its lies, which brings me to “What The Bleep Do You Know!?” www.whatthebleep.com  (Bookmark this to watch when you’re seriously ready for an awakening.)

It’s part documentary, part story, and part visual effects illustrating how science and religion merge, explaining the interconnectedness of all things.

As Amanda’s (Academy award winner Marlee Matlin, also living with a disability: deafness) uninspired life unravels from relationship woes, she’s thrown into a revelatory wormhole challenging her thoughts, beliefs, and perceptions. Her epiphany is that she is the master of her thoughts, actions, and destiny.  http://www.whatthebleep.com/bleep/synopsis/

It’s true you’re human, living an earthly existence, ‘tthough you needn’t succumb to its rule over you. Challenge the status quo. Rise above those fatalistic thoughts concerning circumstances you’re finding difficult…and your abilities to rise above them. All things are possible.

There are times that I, too, feel forgotten. That’s when a hug is required. That’s exactly what I said one day. I shared the following experience in my memoir, Views From My Chariot: A Wheelchair Oddity )
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“God, I need a hug.

I heard, “Come outside.”

It was a sunny, early fall morning. My home is wrapped with woods on three sides, and there was stillness all around, a palpable quietness. Silhouetted trees and dappled sunlight highlighted the blanket of fallen autumn leaves. I took in a deep breath of tranquility. Instantly, I heard rustlings to my right.

I looked over and up to see the top of a lone tree begin a dervish whirl, waving its branches and clapping its leaves off in twirling descents. For the longest time, I beheld the dance. Then I closed my eyes and joined in until the song was over. It was better than a hug.

You know, you can remain as you are or you can lift yourself up and out. You can rise above any challenging circumstance with your attitude and confession. You are the creative force in your life.

You’re special. You’re one of-a-kind, unique as your fingerprint. God intimately fashioned you in His image, with the same creative power as Himself.

Do you know that He knows your name? When is the last time you called on His?

SCI and The Law of Possibility

At one time or another, most of us have used a crutch or have used something as a ‘crutch.’ Whether as a prop or for support, I think when our lives are newly interrupted by disability, denial is as good a crutch as a crutch.

In the beginning—the first ten years—I used it (denial) to my advantage. I wasn’t going to be in a wheelchair the rest of my life and tried to live as if I were still able-bodied; but, obviously, needed help because of my disability. Others telling me how I inspired them wasn’t a help. My wake-up call, out of denial’s slumber, was realizing my pride and stubbornness.

Yes, I charged back into work, and being independent, but I look back at the foolishness of thinking I was more capable than I was, putting myself, and others, at risk.

There were several falls: a back flip off the toilet, a nose-plant onto my pantry floor, a “…tilt me over and pour me out” in my carport, and a semi-twirl off my back porch. The law of universal gravitation is especially cruel to those of us with effected muscular function/responses. Dead weight falls hard. Why hasn’t someone invented an ‘Iron Man’-like rocket boost for wheelchairs?

Anyway, the most dangerous denial was ignoring signs of autonomic dysreflexia (also known as hyperreflexia). http://calder.med.miami.edu/pointis/automatic.html

Autonomic dysreflexia in the SCI has numerous stimuli but most commonly results from an extended bladder or UTI (urinary tract infection), over-exposure in hot weather, constipation, and pain. I would ignore symptoms until a rocketing blood pressure-induced migraine escalated into distorted s-l-o-w m-o-t-i-o-n speech, always requiring emergency assistance. If not treated, stroke, coma, and death can result.

Time, experience, and gained confidence work out the need for ‘crutches,’ but facing the truth on the wings of hope deals with denial.

Whether we improve physically or not, emotionally we can get better, day by day. If you lean on a crutch in the transition, that’s okay. If you’re honestly seeking to fit the puzzle pieces together for adjustment, this fellow SCI even recommends it. A little propping up, a little assistive support, goes a long way on the flight of optimism.
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After all these years, those initial ailments have either changed or improved. More importantly, I’ve become wiser dealing with new ones.

I’ve learned: that opportunities are peeking out from under every weight of limitation, and that some things are “in our head:” Possibilities.

“The Law of Possibility:” the unaffected space of weightlessness in the aerodynamic mind where possibilities abound, and gravity has no influence!

 

 

 

Peripheral Visionary–Looking Beyond Disability

Is there any good excuse not TO BE THE BEST YOU?  http://booklocker.com/books/6811.html  I don’t believe there is. In spite of a body’s ability or disability, the imagination can see around obstructions, and envision friendly skies ahead, for miles and miles, even into the future.

When wearing contacts, I can see the world up close, from here to yonder, and peripherally. But, when wearing my bifocals, I can only see objects up close and at a distance. It’s when cutting my eyes to the left or to the right that my peripheral vision is impeded by that aggravating inch of blurry space unaided by corrective lens.

When distracted, frustrated, or hindered—taking your eyes off the goal, do you have a troublesome “blurry space” where your hopes and dreams seem to dim, even disappear?

Well, if you’re alive and breathing, most assuredly you will make some short-sighted decisions, take blind turns, and encounter reduced visibility from unplanned incidents of illness or disability. However, you needn’t lose sight of your dreams. With optimistic foresight, they can be the means to a restored vision.

Instead of seeing an obstacle—something limiting your potential, hindering your progress, or holding you back, readjust your focus to see the opportunity the test offers.

Yes. Initially, I was blindsided, as many of you adjusting to, and coping with, SCI. Life as we knew it ended; but, disability shouldn’t blind us to the opportunity to live out our dreams. It requires exercising the ability to envision, plan, pursue, and believe that good things will still come true.

It was when I began writing that I could see my purpose! It took a while before my ministry came into focus, but that blurry space did clear.

Just as a biennial eye examination checks your eyesight, neurological function, eye pressure, eye muscle coordination and more, exercising your ability as a “peripheral visionary,” will allow you to see beyond your blurry space of uncertainty.

You can!

P.S. My article is intentionally short in order to afford you 19 minutes to be inspired by another peripheral visionary looking beyond her disability: Caroline Casey: Looking past limits – YouTube http://www.youtube.com/watch?v=YyBk55G7Keo

 

An Apple A Day and Disability Aids

With the prevalence of computers, laptops, ipads, mobile devices, and all their gizmos, it sometimes seems that the state of our society is grim.

By the radical technology of the 21st century, we (able-bodied and disabled) appear advanced and are technologically savvy. But, how can we read another’s honesty, integrity, or motivation by relating over a “device.” One-on-one, eyeball-to-eyeball communications are being sacrificed. Learning to interpret interactive body language and the associative heart-mind connections is becoming a lost life-line.

Are we becoming a robotic society?

On the other hand, one can travel faster than a cheetah’s 60mph in three seconds with the touch of a mouse; can explore foreign lands without making reservations…deciding what to pack…waiting in lines, risk, hassle, and expense-free; earn a degree; have a world of knowledge at our fingertips.

As well, today’s mobile apps not only afford mindless amusement but can provide driving directions for travel and beyond to expand horizons.

For those of us living with a disability, there are iphone apps for providing helplines and medical care, apps for functional movement and alignment of prosthetics for the disabled, language learners for learning new languages, as well as providing expressive vocalization for the nonverbal, blind, and physically paralyzed.

The first bite out of the apple wasn’t such a good idea. However, that company with a bite-out-of-the-apple logo is a good thing!

Here I am talking to you on a lighted screen. Via whatever device, you’re reading my letter at home, at work, in transit, or as you wait.

I’m grateful to be communicating. I’m thankful I have a message. And, like many of you who are confined or shut-in due to SCI, illness, injury, or disease, I’m blessed to have a worldwide avenue where my words can travel into cyber space with an echo you can hear.
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I hope you’re not just reading my words. I hope you hear what I’m saying in my letters to you, because Conversations with Cynthia aren’t conversations until you reply.

Let’s talk. I miss hearing back from you.  

R.S.V.P. with your “comments,” questions, and reviews on my books.

P.S. Don’t forget to enlist for my monthly newsletters with health hints and humor for whatever ails you! (After enlisting by adding your email address, remember to confirm my email to you.)