GPS For Barriers

Today’s conversation is about barriers–wheelchair accessibility. Realistically, they’ll always be there; it’s important to have an alternate plan when you are confronted by one. I’m prescribing two do-s.

The first do is to b-r-e-a-t-h, not react.

You represent all disabilities. Huffy behavior and hateful words maim our name. If you must show your fanny, moon yourself before addressing the powers that be. Remember: They most probably had no say in accessibility regulations; and, you may be the only disabled person they ever met. Please, make it a pleasant experience.

The second do is: connect to your GPS, Good Problem-solving Skills. Here are a few of my peeves, along with their solutions.

Parking spaces: I know all landscapes can’t be leveled, but at least handicapped parking spaces SHOULD be on level ground. I wouldn’t mind wheeling a block just to avoid a teetering transfer. I love the look of charming cobblestone streets and brick sidewalks, but just like the measured lines in concrete sidewalks, rolling over them ushers in rat-a-tat-tat spasms for me.

Sometimes, this is unavoidable. But, when I have the choice of a handicap park on an incline or a level regular parking space, I choose level and wheel a little further. No big deal.

Air-pump hinge doors into restrooms: I bulldoze through these difficult doors that I otherwise can’t push or pull open. After my first entrapment, I patiently waited for a savior to enter. I now ask assistance from someone behind the sign-in desk or waiting room to listen for my, “Help!” to come rescue me.

When I’m in an auditorium or conference center, I remind a friend or person sitting next to me, “If I’m not back from the restroom in fifteen minutes, PLEASE come release me.”

Commode seats: What’s with the open-ended, horseshoe-shaped commode seats! Good luck? They trap my skirt tails, and their sharp molded edges are painful!
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I have a GPS, but it’s a “Girls only.” (“Comment” me for my solution.) For you guys, it appears to be an anatomically obliging feature.

Hotel rooms: Traveling is always a roll-of-the-dice. I’ve figured out the places where I travel regularly, but for overnight or extended stays, hotel accessibility is like interpretive dance: “You mean what?”

Most hotels are accessible to the letter of the law—national regulations. When I request a roll-in shower, the floor is slanted toward the drain causing me to, literally, spin-a-wheel in my turns, sort of like an out-of-control dance. Then, there are the hotel beds that Jack (in the beanstalk) couldn’t climb into. What are the designers thinking!

Since I always have a travel companion, we call housekeeping for someone to assist them in heaving me into bed at night. Thankfully, I can slide out in the morning.

For those metal-encased glass doors I can’t budge when shopping, I yell to the first eyeball contact: “Can you please help me?” Please and help are good words. I use them often, with gainful returns.

What GPS assist you in circumventing physical barriers?

 

Let’s Get Together…

I post each Friday to stimulate thought for our conversations, and for you to know that as a fellow SCI, I know and understand your plight.

I recently added pictures, an ‘About Me’ page, information about my books (Views From My Chariot which is frozen for sales until its second edition is available, and HOW TO BE THE BEST YOU will be available mid to late April.), and, we’ve talked back-and-forth. This week, I’m adding a link for us to meet in person!

This is an excerpt from last week’s TV interview about me, my adjustment to SCI, and my books. It’s a little over two minutes long, so look fast!

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http://www.youtube.com/watch?v=skwc-tczGkE&feature=youtu.be

HAPPY EASTER!

Pause For A Cause

I don’t talk much about my problems or the disheartening ramifications of my SCI. I take them to God. That’s where I vent my frustration, cry, and fuss. Then miraculously, I can suck it up, redo whatever, or start over. I believe ‘start overs’—second chances—begin in hope. It’s the pauses that make it possible to start over or to cut a new trail in the actualization of new dreams. Let me use the comma as an example.

A comma is a punctuation mark that represents a pause to the eye of the reader. Whether used to delineate a list, give emphasis to a word, separate words and phrases of words, the comma gives clarity of interpretation. Like in the saying, “Life is just, not fair.” the comma clarifies that happenings in life conform to some fact or reason, although they may not be fair.

For instance: My car ran off the road, up an embankment, and flipped back down onto the road, landing upside down on its roof. The wreck was caused by the fact that my rear tires had a blowout. My SCI is its result. It wasn’t fair. It wasn’t something I deserved. It happened.

As with the saying example, I used a pause—the comma after “just”—to accept it, re-evaluate, and clarify my options then, reconfigured my old dreams and created new ones.

WITHOUT the comma/pause, the sentence reads: “Life is just not fair.” Have you omitted the pause that could give clarity to your situation/disability/illness? In belligerence or bitterness, have you ricocheted off every hopeful course of action offered to you to better your life, to adjust to disability? Do you find yourself repeatedly boomeranging back to the same bad attitude of ingratitude and self-pity? It’s a self-fulfilling prophesy only you can change.

We ALL experience dashed hopes and broken dreams, but is that any reason to quit hoping, to stop dreaming, or to punish others because you have? Since we’re promised nothing more than today, why not begin today with a clarifying pause.

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In recognizing there is a problem, you open the mental windows for fresh ideas to circulate. The desire to do something about the problem(s) is the door to your freedom. Then, the choice to make the changes puts you on the path to fulfilling your purpose.                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                             My

My first book, Views From My Chariot: A Wheelchair  Oddity http://booklocker.com/books/6235.html , is a beginner course for you to recognize fresh ideas that will revive your hope after a SCI, resuscitate mental clarity for strength to push forward, and encourage you to open the door to a promising future that awaits you.

Once you make the choice to open the door to your future, my second book, HOW TO BE THE BEST YOU-from A to Z, coming SOON http://booklocker.com/books/6811.html,
is somewhat of a follow-up—a how-to find yourself, rediscover your heart, change your ‘stinkin’ thinkin’, and take a detour around the roadblocks to fulfill your destiny.

My hope is that you do. Let me be a part of your turnaround, your start-over, your happiness, and your life’s fulfillment. Then, please tell me about it.

We’ll all benefit from your success!

Beware: Karma-BANG! BANG! DUCK!

We’re all familiar with the Eastern philosophy of karma: the inevitable action of bringing upon oneself results, good or bad, of our own actions, or “What goes around, comes around.” Here in the Bible Belt, it’s referred to as “The Golden Rule”: Do unto others as you would have them do unto you. What personal messages (PM) are you sending out…that inevitably come back to you?

Optimistically, we are always kind (in word and deed), patient, sympathetic, and loving, to the Nth degree. SURE!

In all honesty, you KNOW there are times when you deliver impatient, arrogant, and hateful PMs in a variety of ways: in exasperating return lines, home interruptions by telemarketers, misunderstood orders by outsourced telephone assistants, garbled orders (and prices) in drive-thru food services, road rage reactions, frustratingly persnickety family members, and sadly, on-and-on.

My question is not only to those of you adjusting to disability, but to anyone wondering why life seems to always give you lemons: What boomerangs back at regular intervals in your life? Misunderstandings; relational discord; exclusion from social gatherings; perpetually being over-looked for that promotion; constipated cash flow; recurrent health issues; bad luck? If any of these strikes a cord, you may be the one plucking it.

I’ll illustrate my point with the analogy of ammunition. Much like shooting a shotgun, unresolved issues detonate emotions. There may be lots of issues/pellets loaded into the shell (repressed emotions) or one big issue/slug (volatile emotions). Wrapped in the subconscious, they lay loaded, cocked, and waiting to explode their charge.

When the specific volatile and toxic emotion is triggered, a single projectile of words or actions like the metal slug, or lesser bullet, is aimed to murder its downrange target. Always looking out for a particular perpetrator’s profile, this person is ever-conscious of their injury. This is a stalker/predator hunting style. Vengeance is theirs.
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Then, like the number of smaller pellets wrapped inside a shotgun shell, are the more common repressed emotions from childhood, adolescence, and/or adjustment issues. They have become so enmeshed in our temperaments and relational styles that the emotion triggered is associated with a personal affront or putdown.

In a compulsive need for self-defense, and in ignorance to the cause and effect, the disabled and the able-bodied alike shoot off verbal ballistics. BANG! BANG! Stinging words scatter; more whelped offenses. Remember: What you sow, you will reap.

In PART TWO of my book, HOW TO BE THE BEST YOU http://booklocker.com/books/6811.html,
I offer a strategy of brain exercises to train your out of shape, disabled brain. You will learn to strengthen those flabby mental muscles that have offered no resistance to out-of-control thoughts. You will realize their continued circuitry—mulling them over and over and over in your mind, fires up the same emotions as the original words/action/offense did.

DUCK!

I Can Hear With My Eyes Closed

Although it sounds like one, this title is not a “Yogi-ism.” Periodically, don’t we all think like this: that we know more than we do because we’re blind to our offensive behaviors; especially when in the throes of a disabling adjustment?  Where is the disconnect?

I think we can be so self-deluded that we perceive our weaknesses as strengths and our ignorance as wisdom. You don’t know what you don’t know, right? These are our blind spots.

For example: When I moved to Alabama after my SCI, I believed my arrogance was confidence.  It took a friend to tell me, “Cynthia, you think you are God’s gift to Tuscaloosa, but you’re the turd in the punch bowl.” OUCH!

Here me now: If you don’t learn humility, you will be the burr under someone’s saddle and a lot of buckin’ will be goin’ on! Relationships get broken by this rodeo habit.

Un-deniably, our families and long-time friends see us through glasses of our past encumbrances, and hear our weaknesses through ear trumpets[1] (or Bluetooth if you’re technologically current), blind and deaf to the positive progressive changes.

Why? Because they’ve been there observing us through our childhood and adolescent stupidities, poor decisions, irresponsible words, and adult hang-ups.

It takes seven positives to negate one negative. That takes a lot of work; for what?  A family member to ask accusatively concerning positive change in your life, “When did YOU start blah-blah-blahing?” You know, as well as I do, that family suffers short-term memory loss but are champions of long-term memories. Just sayin’….

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It’s difficult enough keeping open communication and trying not to offend in a “normal” relationship. So, what to do when tragedy strikes you or one you love, specifically with SCI?

It isn’t easy and it isn’t simple. It may be complex but it shouldn’t be complicated. (Go to Webster for definitions if you’re puzzled.) When things start to become complicated in my life, I re-evaluate my plan, my intention, and/or my motivation.

Since “it takes a village” for me to independently live my life, if someone who volunteers to help in some capacity has a conflict, or arrangements aren’t squaring up, or I judge that something isn’t important enough to do at that time, I cancel the plan. My wants do not trump another’s ease of living. Too much inconvenience is TOO MUCH.

There are always considerations when living with a disability. Keep your eyes and ears open. Like the title implies, many times there are discrepancies between what we THINK we see and what we THINK we hear.

Open your eyes. It facilitates hearing the truth.

[1] Ear trumpets showed up in the 17th century. (Beethoven used them in his hearing decline.) Because of the stigma associated to old age, they were hidden in fans, walking sticks, and even camouflaged in jewelry.

When Reality Bites

I’m a dreamer and a visionary. Some call me unrealistic; I’m creative and think out-of-the-box. Some say I’m too particular. I’m an unrelenting doer aka stubborn; and a rebel, because I’m not tied to the status quo.  Since living with a SCI, my body also has a mind of its own.

There are days that my fingers rebel–they don’t want to bend, grip, or squeeze. For those times, I’m realistic. I keep plastic glasses and unbreakable dishes, go without make-up, dress in something that goes over my head, struggle with hygiene issues, and drop LOTS of things.

When my fingers are cooperative, my hands decide to drop what my fingers want to hold, like my litter scooper. That’s when it’s easier waiting 24 hours to, literally, “pick up” hardened clumps of litter from the litter box than to scoop them.

On any of these given days when my reality bites (ramifications of disability), or the day thereafter, you will find one or more of the following items strewn on the floor throughout my home: magazines, books, pens with their to-do list or notebook, pillows, dental picks, my hair brush, my cat groomer, broken glass, scattered espresso grounds with brown streaks of espresso running down my cabinet (and brown wheelchair tracks when I forget they are there); even a meal, partially dried and thoroughly stuck to the floor under my oven. C’est la vie! (That’s life!) Or, that’s (only a SMALL part of) my life.

To add insult to injury, I used to be a neat freak; still am, somewhat. To keep my sanity, and sense of humor, I’ve learned to let go (pun intended) of what I can’t control. That doesn’t mean that I don’t cuss, cry, or throw something in frustration. It simply means: I push on. Quitting isn’t an option. (Read the “I quit. No, wait. Never mind.” chapter in my book, Views From My Chariot: A Wheelchair Oddity http://booklocker.com/books/6235.html , for expensive frustrations!)

You can call me unrealistic, particular, stubborn, and/or a rebel. I don’t mind; you’ve a right to your opinion. But…

I KNOW: Thinking out-of-the-box to solve daily limitations and their frustrations instead of complaining about my circumstance, has brought me contentment and peace.
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I KNOW: Being persistent and determined to live as independently as possible instead of expecting someone else to take care of me, has given me that independence. I’m grateful for it.

I KNOW: In respecting my life and well-being more than fearing other’s judgement of how I live it, I am gratefully responsible for, and happily free to reach, my potential.

I KNOW: As a result of dreaming and believing in my abilities instead of succumbing to a disability, I’m living my purpose.

Are you?

When reality bites, bite back…with a bulldog grip!

Blue Bird Days

For several years after embarking on my chariot (wheelchair) ride, I experienced a brooding sadness. No one knew about it, only me. After the second year, I pinpointed it to occur for a couple of months in the fall. It dissipated as subtly as it appeared.

In the third and final year, I realized it was a mild depression. This sadness resulted from my association with the month of my SCI, September, and the loss of participating in favorite fall activities and exhilarating winter sports. This realization began my resurrection.

I had already grieved the death of sojourning the remainder of my life via feet (although I do believe in miracles). Now, it was time to bury old dreams and resurrect new hopes.

I leased an apartment in a newly completed complex. I recall the prediction of a possible evening snow. With the late-night news came the announcement that, indeed, it was snowing.

I threw on a shawl, wheeled out to the sidewalk, and laid my head back as silent snowflakes sifted softly onto my face. I lingered there for the longest, drinking in the peaceful beauty, and praising God, out loud.

Yes, I remember wondering if my neighbors thought I was crazy; but my joy trumped worrying about what they thought. I missed the snow. Just because I couldn’t ski or cross country in it, didn’t lessen my delight. I was in heaven. (A “crippling” half-inch accumulation of snow caused all schools to be closed the next day. What?)

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In recognizing my sadness, I could open the mental windows for fresh ideas to circulate. My desire to do something about it, to find happiness in other ways, was the door to my freedom. Choosing to make the emotional change adjusting to disability, put me on my healing path.

My first book, Views From My Chariot: A Wheelchair Oddity http://booklocker.com/books/6235.html , is a beginner course for you to recognize fresh ideas that will revive your hopes for a promising future after disability, resuscitate mental clarity for strength to push forward, and encourage you to open the door to the productive, fulfilling future that awaits you. It’s your choice.

Still, snow is rare in Alabama, but that doesn’t limit my experiencing it. Warren Miller Entertainment provides me vicarious thrills “catchin’ air” around the world. Mostly, they film heli-skiing and backcountry skiing, WAY beyond my expertise. But this way, everyday is a blue bird day on champagne powder for me!

“On your left!”

SWUSH!

Dear Family,

I don’t have many disabled friends, although time and again, friends and friends-of-friends give me numbers to call of people adjusting to a disability, disease, or illness. In addition to living with a disability, my counseling experience seems the perfect fit. I can listen with an empathetic ear, answer personal questions, and offer practical solutions for daily living. Before moving away, one of these women became a dear friend.

She was a go-getter. Obstacles were met with determination. She thought of tomorrow as the result of what she made of today. She was, and I’m sure she still is, a trooper. We lost touch after she and her husband moved. It was fun with the both of us rolling around together in our homes. I hadn’t been in a room full of wheelchairs since rehab!

From all the conversations getting to know my comrades-on-wheels, with the exclusion of my friend Julie, this is what I’ve found: Most succumbed to disability.

Understandably, they were faced with the drastic lifestyle change. And, the added stress of dashed dreams, the uncertainty of tomorrow, and pressure to adjust before the impact of the new reality had sunk in, brought an emotional tailspin—depression. This is when family is most important, although it was their families that seemed to be the insurmountable barrier to their emotional freedom and physical independence.

Caustic remarks fueled emotional eruptions. Innuendos, hints, and sarcastic tones of unspoken resentments from care-giving family members were destructive to all; particularly, the ones with broken wings. They couldn’t fly away to safety, and healing. They were sentenced to flop around and be pecked by unkindnesses.

The saying, “Sticks and stones may break my bones, but words will never hurt me.” is untrue. Words wound, as well.

Family should be a safe environment nurturing us back into a productive life. Even so, it’s difficult for you who love us to stand back and watch the struggle—dressing, feeding, wheeling ourselves—when you could easily do it for us. But, we must be allowed the struggles. This not only increases our endurance but also our confidence toward independence.
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Independence requires we care for ourselves, apply make-up, or shave. Adjustment asks for time for our doubts and confusion to settle. In time, we gain confidence on the slippery slope of acceptance toward a healthy adjustment. Please encourage us to hope, to make plans for a new future. When the time comes, we will have learned we will be okay on our own. After all, this is true for anyone.

We don’t like feeling helpless. We don’t like feeling we’re a burden. Help us be neither.

We are aware that it’s a difficult adjustment for you. We do know you’re suffering, as well. Your dreams for and with us have been altered. You miss the way we were. You feel guilty because you do. It’s natural. It’s okay. You have your own adjustment. Together, we can do it.

Once we gain emotional freedom, prove our independence, and begin to laugh again, you can push us around.  We’ll accept a freebie, any day.

THANK YOU!

Where art Thou, Romeo?

Movies and romance novels propagate the fantastical delusion of the perfect other in our lives. Though it’s subliminal: “…below the threshold of consciousness.” (Merriam-Webster), these scripts imply that The One is out there waiting to meet all our emotional and physical needs, just like that. The infamous line in Jerry Maguire, “You complete me.” doesn’t help in refuting this romantic notion of effortlessly living happily ever after.

STOP! There is no such thing. Forget it! He/she doesn’t exist. Was there a Snow White and the Seven Dwarfs Two, Sleeping BeautyAfter Her Awakening, or Cinderella-My Family Will Come? No, deluded romantics, because after commitment comes reality.

Because God knows the cost of true love, I believe that the physiological and psychological effects of being in love are His whimsical whammy for procreation. (You know, the surges of serotonin in the gut, aka butterflies, and the mood enhancer, dopamine, messing with the brain’s reasoning abilities.) If it weren’t for these out-of-control emotions, how many of you would knowingly walk into the most difficult role of your life? He knew the strength of emotion, as well as the emotional strength, necessary to star in this role. He is the Epitome, Price, and Prize of commitment, of unconditional love.

Although I have yet to experience it, I believe in forever love.The many couples who remain married after decades of living this forever love say that they work at staying in love, day-in and day-out. The secret is that neither one falls out-of-love with the other at the same time.

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PHOTO Heart REFLECTION SWANS LOVEA successful love story takes work and understanding. Getting to know anyone takes patience and time. It requires acceptance (of their preferences or prickly quirks), availability, kindness, selflessness, and persistence when things get painful.This is when most people throw up their hands and throw-in-the-towel on love. They choose to not deal with the conflict. What good story is without conflict? Besides, marriage isn’t a mindless emotional high. Who could sustain it?!

A committed marriage, or any committed relationship, is to selflessly support, help, and heal each other on the road to their (and your) personal wholeness. Let’s face it: the inevitable daily friction of rubbing shoulders, re-opens childhood wounds from early relationships; raw, unresolved emotions sting and irritate.

If you feel you are with The One, are you going to run away when things get tough and let another scab form over your unhealed wounds? Or, will you stay to apply (and receive) the healing salve of true, unconditional love—the ointment of your soul?

Living With a Disability-WITH A HOPE

According to me, one of the misfortunes of living with a disability is the loss of spontaneity. I miss impromptu trysts with friends for a midday coffee, catching a matinee at the last minute, foot-scorching sands on the beach, beach towel sunbathing, walking barefoot in the rain…but, living with a disability can not diminish beholding beauty.

Recently, I felt overindulged at a friend’s “throw her own” birthday party. She invited an estimated seventy friends for a special luncheon at her country club. (For you guys, if you’re not into flowers, envision the panoramic view through the floor-to-ceiling windows of the 18-hole, 6,702 yards of rambling golf course. Now, fantasize about your par 71 score. Check back in for the last three paragraphs.) The speaker was Dorothy McDaniels of Dorothy McDaniel’s Flower Market fame in Homewood, Alabama. (She has even made arrangements for Margaret Thatcher!) She demonstrated techniques of a dozen different floral arrangements using red roses and green roses (I didn’t know that there were green roses.), green hydrangeas, purple irises, hot pink lilies, yellow this and thats, and white everythings; I love the purity and simplicity of white.

My rose after a two day bloom

 

The table settings were breathtaking. At each place setting was a single rose tied with bows of purple organza and spring green satin. Every rose was a different type and a different color.

 

The centerpieces were low and glorious with light and hot pinks, purples and periwinkles, orange, yellow, and green. See!

A floral rainbow

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The meal was as colorful and tasty: Spring greens salad sprinkled with sliced strawberries, wild mushroom crepes with Béchamel (a rich, creamy white sauce) over a rice pilaf, and rainbow sherbet with a Pirouette (rolled cookie) served in a long stem wine glass. Yum!

Outings have been rare lately, although I’ll be out promoting my book, Views From My Chariot: A Wheelchair Oddity, in the upcoming months! August 23-26, I’ll be in Chicago for the fall National Rehabilitation Conference peddling my book. Look me up if you’re there.

Although, I believe this is my temporary home (like Carrie Underwood’s song), I travel daily, making the best of living with a disability. Each room in my home is decorated with a different country’s influence. My wardrobe is ethnically chosen, and two of my three cats are Persian and Russian.

A language barrier you wonder? No problem! The language in my home is love—the universal language!

When I “relocate,” I look forward to traveling this universe beholding its breathtaking beauty. I’ll be whole and healed, enjoying unsurpassed spontaneity. That will be something.