AWOL for a bit

I’m preoccupied with W-A-Y overdue SCI physical examinations and pressure mapping for the best cushion and wheelchair for whatever ails me, as well as getting this website completed. Minimally, I got it up-and-running for weekly posts; now, I’m putting on the finishing touches for you.
I may be silent for a bit, but will be back with a nibble from a crazy friend’s sci-fi novel of a wheelchair revolution, along with a few other blogs you may enjoy!
For now, click around my musings for something that interests you, and tell me what you’re thinking.
Let’s talk.


Heart Worms

The first of January before kindergarten resumed, I invited a playmate over for my 6 year old grand niece. Upon Mac’s arrival, North Hope gave a narrated tour of my home. For the next hour-and-a-half, they shared a couple of their favorite toys, wrote their names and drew pictures with chalk on my driveway, played indoor croquet then, took turns hobbling around using the mallets as cruthes. They stopped for a snack and, afterwards, went their separate ways—one on his Leapfrog, the other on her Kindle.

While the grandmother and I were talking, I overheard an unkind tone in my grand niece’s voice. Her guest had asked if he could play the ‘Angry Birds’ game on her Kindle. She angrily said, “No! I’m watching Rapunzel.”

I intervened.

After her 3 interruptions of “but” while I tried to explain sharing, I said, “North, your ‘buts’ are excuses. Listen with your ears and your heart. Mac is about to leave. Put your movie on pause and let him play the game for a minute. You can finish watching it after he leaves.”

She countered, “But, my heart doesn’t want to.”

That’s not what I wanted to hear, but it’s all I needed to hear: A heart speaking its truth.

To North, I said: “Sometimes, the result of getting what we want right now is harder on us than the temporary sacrifice.”

And to Mac: “I’m sorry, Mac. It’s her Kindle, and she has chosen not to share.”

As he left, he spied a baby lizard in my rock garden and ran in to ask North if she wanted to see it. Offense forgotten, they excitedly ran out together to share nature.

I am a firm believer in allowing everyone, especially children, the choice to do what their heart dictates. Don’t get me wrong. I’m not propounding to follow your own will as did Freud and Watson, and I’m not trying to be Dr. Spock or even PC, unless it’s polite consideration—simple decency—compounded with cooperation.

As children, if we’re not taught to be considerate of another’s person, feelings, and property, and how to cooperate in action and deed, as adults we’ll be irritable, hateful rascals to live with; much worse to care for with a SCI or some other life interruption.

How often do we do things our heart doesn’t want to do and are riddled with resentments thereafter? The service rendered is half-hearted (usually with tangible attitude), and the recipient senses the inconvenience. No one is blessed. Everyone suffers!

Whether you’re disabled or able-bodied, do what you do—profession, family responsibilities, errands, exercise, church, charity, or care-giving—because it’s in your heart to do it; not because someone expects, requests, requires, or needs it.

If you find yourself murmuring about any of the above or accusing someone else for your unhappiness or their lack of appreciating you, you may want to re-evaluate your expectations, intentions, and motivations for doing whatever you’ve enlisted for or agreed to do.

In this case, martyrdom is self-inflicted. It will never meet an expectation of appreciation, an intention to gain attention, favor, and praise or a motivation for approbation.

Contentment and peace come from a heart given to what it gives and does, freely; not from a heart riddled with holes from the worm of resentment.

Ischial Pressure Relief


Recently, I was reminded of the #1 Rule stressed in rehab: ischial pressure relief. After making a round-trip in someone else’s car to visit family, an hour away, my right ischium screamed for relief. (My car is fifteen years old, so we stick close to home.) Miraculously, this was the first breakdown in my thirty-six+ years of disability.

Lately, I’ve been experiencing nicks and scratches on my tail bone/coccyx when sitting wrong on the toilet seat, and bruising under an ishium while dragging my bony maroney on and off. This first week of 2013, I’ve been playing bed tag—2 hours in and 3 hours out—everyday, to ward off a decubitus ulcer from one of these bruises.

With this foremost on my mind, and weighing heavily on my buttocks, there are several techniques to relieve ischial pressure. Each is to be performed for 60 seconds, every 60 minutes. Here are three of them:

The first is the easiest and most independent. It can be done by a quadriplegic, because I did this one until three years ago, but all paraplegics use it: the push-up lift.

Using your hands to grip your tires or arm rests if you use them, lift your buttocks off your cushion. (For independence’s sake, I now brake my wheelchair parallel to my bed, place an overstuffed pillow on my bed, and lay over it.)

Both of the following require the assistance of an experienced second person.

For the second technique, bend forward into someone’s lap. They support you and slightly pull you toward them from under your armpits.

For the third, someone reclines your braked wheelchair backward into their lap.

Remember the acronym RIP (relieve iscial pressure)—every hour, for one minute.

Let ‘er RIP!